Inside Collection (Report): e-Research Community Engagement Findings
Summary: Discusses issues with access to and usage of datasets caused by data protection regulation.
A number of researchers commented on the legal and ethical issues in relation to conditions applied for the access and use data and on various ways in which these might inhibit the research process. In many fields, the sharing of data is subject to policies, which are designed to protect confidentiality and IPR (e.g., where commercial collaborators are involved). In some cases, these policies were seen as being too restrictive. In some cases raised by respondents, licensing policies are still in their formative stages, limiting the ability to share data. This posed a problem for medical researchers in particular: “W
"have spent endless hours, essentially one person full time on a big collaborative project negotiating these issues [...] the fact that there is no national policy has cost us [...]" (researcher)
One of the solutions suggested was to move the computation to the data:
"you could use other people’s data but not necessarily download it, its licence agreement kind of allowed it. And then you could run your model regardless [...] you could just get the results from the model and that sort of thing so there was a lot of discussions on how to deal with that as well." (researcher)
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This work is licensed by Alex Voss under a Creative Commons Attribution License (CC-BY 3.0), and is an Open Educational Resource.
Last edited by Alex Voss on Jun 9, 2009 4:19 am -0500.
Access Regulations for Datasets